P-05-926 To Provide a Chronic Fatigue Department in Wales, Correspondence – Petitioner to Committee, 03.03.20

Thank you for your letter that I received yesterday of a copy letter to Janet Finch-Saunders in reply to her letter of 24th January 2020.

In this letter I see reference to ME/CFS and a Fibromyalgia Advisory Group. This letter refers to PAIN only and those who represent pain services.

I see no reference to EXHAUSTION/FATIGUE.  What about EXHAUSTION/FATIGUE when NO PAIN is involved?

In my Petition requesting a Department for CHRONIC FATIGUE I did not mention pain once.  This is something completely different to that linked to ME and has not been addressed.  I made no mention of pain throughout my 23 years of suffering this illness.

I think therefore the petition has deviated from my concerns and needs to look at this in a separate light.  We need to look at exhaustion when there is no pain linked to it.  It seems to be a completely separate issue.

It says, "The main symptom of CFS/ME is extreme physical and mental tiredness (fatigue) that doesn't go away with rest or sleep.  This can make it difficult to carry out everyday tasks and activities.  Also the inability to think, remember or concentrate." But concentration on pain seems to be uppermost under the ME/CFS Advisory Groups.

I would like the Committee to concentrate on Chronic Fatigue rather than the pain as I feel that this side of it is being overlooked.

With thanks